Blessed & Beyond

Shawna is with Jesus Christ

2010-01-04T13:47:00.003-06:00

Hello, this Aaron Mascolino Shawna's Husband. I apologize that I am just now getting around to posting this. I say this with joy and tears; Shawna is with her Lord and Savoir now. It has been over 6 weeks since she passed away. I miss her dearly. Thank you for your prayers and support. Please excuse the shortness of this post this is hard to do so please if you questions you may email me.

In Christ,
- Aaron Mascolino
- aaron@mascolino.com

Vacation

2009-11-13T18:22:00.005-06:00

Hi guys. Well, I know it's been a long time since I've posted anything. Let's just say I've been taking a little bit of a vacation. Aaron, RJ and I went to the Creation Museum. It was a lot more fun than the last time. RJ fell a sleep when we were touring the museum and started getting routy as it was close to time to leave the museum. We all had a fun time. One of the perks was that because we stayed in a larger room there was the ability to block off areas and let RJ just crawl around. By the way...RJ is now 1 year old as of October 24th. I've got pictures but my camera is actually in the car. And as of tonight he's got 6 yeeth! This opens more food opportunities!!

Aaron and I celebrated our 9th year of marriage in Gatlinburg on the 28th. It was wonderful. We are hoping to go back in a couple weeks. I would like to stay at the "Christmas Hotel". We know that that might not be possible so we may look at a nice hotel in town or go the way the way we always do and that's a cabin. I would prefer the cabin but since we may only stay overnight then a hotel might be the best choice. Either way it will be a fun trip.

Some things have happened since the last post in my health. In October we were given the news that there was nothing medically that they could do and that the cancer had actually spread to my lungs and there are more spots on the liver. When we first got the news it was very shocking, but we prayed to our Father in Heaven that He would give us peace and comfort at this time. This whole trial has been showerd in prayer, by friends, family, and people we don't even know...Friends who have told us that their friends are praying for us. I'll continue (praying and this story) From there I was sent to be admitted to UAB for a blood transfusion. Later that evening Aaron and I were in the hospital room talking and we both agreed with amazement that we had been given the peace and comfort we needed and asked the Lord for. I can't tell you how many times He has done this in our lives.

There was another time that the Lord answered prayer that just amazes me. Aaron and I were in the hospital and he really wanted his hymnal to sing some songs to me. He called our pastor who said that he would come visit us that nite. Well as he was leaving to come to the hospital (from Owens Cross Roads to Birmingham) he felt that he needed to bring his hymnal...Aaron didn't ask or allude to it at all. Our pastor arrived and handed Aaron the hymnal and Aaron just started crying...this was truly an answer to prayer.

The Lord answered a prayer of ours on Wednesday. We needed someone to keep RJ for a few hours while I went to the doctor. It was very short notice and we prayed that we would be able to find someone that we trusted and who had kept him before. The first person we called was not able to (and I hope their family is feeling better.) Praise the Lord, the second person we called was completely free, able and willing to keep him. She had also kept him before so she was familiar with some of his habits. Again; the Lord answers prayer.

So it stands...I've got swelling and am taking lasix for that, I'm also having some confusion/memory problems. And the pain has picked up a little. It was never bad to begin with. On Thursday we are going back to CCI to get bloodwork done. We had gone this Thursday and the week before. Right now my white cell count is at 0.5...very low. So, we are trying to figure why such a drop in a week. I have to where a mask IF I go into public places or around people. Handsanitizer is now my best friend. We are praying that my white blood count goes up and my red blood cells either stay the same or go up as well. So, if you would pray for these specific things, I would really appreciate it. Also, we are starting to look into Hospice and if you would pray for that specifically I would greatly appreciate that as well. And Aaron especially...he has been a BIG BIG help and support during all this. He takes care of me better than any nurse could. I cannot put into words just how much I appreciate everything he does.

Oh, today I learned that I have a habit of sleeping in odd positions such as...a Kung-fu position, or my arms might be straight out with my elbows bent. Or I may have a book in my hands as if I'm reading it. He's told me that he will put my arms down I don't feel him doing this and I have NO idea that this has even happened. I was so surprised when he told me this.

I'm sure most of you who read my have'nt seen me in a while. One day I'll get a picture of RJ and myself on here. RJ is 2.5 feet tall and myself, I'm the same height however; I have an unkempt military buzz (my decision) and nice hat and scarf collection. I like hats and scarfs.

Well, that is about 2 months summed up in a few paragraphs. I promise I will try to update more often. Thanks for all your prayers and support. Love you all!! Please keep in touch and I will try to do the same inbetween doctors appointments.

The God of Miracles

2009-09-09T16:31:00.002-05:00

Today we got some wonderful news. About a week ago I had an MRI done of my head because I had been having headaches and we were concerned that the cancer may be spreading in the head. As usual, we were anticpating what the news would be and we had a holiday weekend to go through as well. Today we got the news. It appears that there are no signs of the cancer on my head...the radiation/the Lord had taken care of the cancer. Praise God!!! He is the only one to be thanked, praised and honored!!! He is the God of miracles and he has truly worked one. Thank you for all your prayers for my health and our family. Thank you Lord for your mercy and lovingkindness!!

10 Months Old

2009-08-24T11:37:00.004-05:00

Today R.J. is 10 months old...

How Are You?

2009-08-24T10:07:00.006-05:00

It seems like "How are you?" is always the first 3 words in any conversation I have with another person. It's not that I don't appreciate people asking, it's just that it dawned on me that it is the first 3 words to start any conversation someone has with me. What if we try something different...why not ask "Hey, have you had any pickled beets lately?" Ya know, just to shake things up a bit. Hehehehe.

Well, this post was really intended to try and give a little update and share a few things. Right now I am blogging from Crestwood Hospital Room Number 322. We are on day number 4 and very much ready to go home...to real food. I've been on a liquid diet the whole time I've been here. But, first, let me back up and fill you in on what has happened up to this point. My mom is now out of the hospital and has to stay off her toe (not the easiest thing for her to do). She still has to take the IV antibiotics, and I believe it's getting easier for dad to administer them to her. Thank you for all your prayers.

Now comes the tricky part of trying to remember all the little things I've been going through that past couple weeks. It all just seems like a blur. What I failed to mention in my last post was that the doctor in Birmingham scheduled me for a colonoscopy, which came back fine. Well, I was still having bleeding problems. I was currently taking something for heartburn/acid indigestion every day. However; I was still getting the heartburn. Aaron decided that we should call our GI doctor and we did. They were able to get us in the next day. (Answer to prayer.) We saw him on a Thursday He scheduled us for an Endoscopy or something like that...it's called and EGD. This was scheduled for the next day; Friday. (Another answer to prayer.) The EGD was able to find that I had a pyloric ulcer that appeard to be the cause of the bleeding. (Another answer to prayer.) So, how did I get back here? Well, I was feeling the same way I had felt before when my red blood count was low. We called the doctor and they set up an appointment for me to have my blood checked and sure enough, it was low again. I was admitted on Thursday to get a blood transfusion and we are waiting to be set free. What has been happening is my platelets have been dropping and this morning, they have taken a turn for the better (Another answer to prayer.). However, my red count has dropped a hair, so we are not sure what this is going to mean as far as going home. If you happen to read this please pray that we are able to go home and that the Lord woud sustain the red count and even bring it back up. I will say this, even though this is not the place I would like to be right now, the past 4 days have been good in that Aaron and I have really been able to get into the Word and discuss things of the Lord, listen to sermons and watch some really interesting DVDs on some of the historical places of the Bible. It has really been a time of enjoying the Lord and I am thankful for that.

I know this has become a long post, but there can be a lot of things crammed in my week. Thank you for taking the time to read it. And thank you to all those who have been praying for our family during this. We have definately seen the Lord working all over and it is amazing!!

It's Been a While

2009-08-12T19:38:00.003-05:00

I know it's been a while since my last post, and quite a bit has happened. We had an appointment with the oncologist in Birmingham where we found out that my red blood cell count was very low and I then had to be admitted to the hospital for a transfusion. That went well and afterward I felt like a totally different person. We are scheduled to go for another appointment to see him next Monday. I'm hoping we might find out when I may have a CT scan done to see the progress of the radiation and the chemotherapy. But, right now things are going pretty well with me, side effects are minimal, appetite is doing well. The Lord has really blessed me with energy to get out and spend time with Aaron and RJ.

My mom; however, is going through a lot right now. Earlier this week she had to go to the ER because she had a VERY bad migraine headache. She was able to come home, and the next day she had a appointment with her GP who then admitted her to the hospital. She was scheduled to have surgery on her toe also this week. The surgery went as planned and all went well with it. She has had numerous tests ran, and what they have been able to see is that she has a ruptured blood vessel at the base of her brain. The blood vessel has stopped bleeding and the next goal is to find out what has caused this and the best way to treat it. I ask for those who read this to please pray for her. Her name is Debbie. We really do appreciate it!

Hectic

2009-07-25T17:59:00.002-05:00

Lately mom and I have had to "check our calendars" when making appointments because between Aaron, mom and myself we have had a lot of doctors appointments to make and keep. There have been some appointment conflicts here and there but nothing that couldn't be worked around or re-scheduled. Right now my mom is going through some serious issues with her toe. She went for an MRI the other day and is on antibiotics. As it stands now, the blood work shows that she has an infection in the bone and will require as pic-line and to have IV antibiotics administered to her that way. We are praying that maybe the pic-line won't be absolutely necessary. Our main prayer is that this will take care of her and get the infection totally cleared up and not have to have any other major medial procedures done. If you would please pray for her I would greatly appreciate it. Thank you.

Knee Surgery

2009-07-25T17:53:00.003-05:00

A lot has been going on here lately. One thing that has happened is that Aaron had knee surgery last Wednesday. It went very smoothly and quickly. The surgery was done to remove a piece of dislodged cartilage that was fairly large from Aaron's knee that has been bothering him for years. We are praying now that it has been removed that it will help his back because he's been compensating by the way he walks due to his knee hurting all the time, not to mention taking away the knee pain. He is still fully recovering and having a little pain from the surgery and some of the swelling going down, but all in all he's doing great! Thank the Lord!!!

Bite

2009-07-25T17:48:00.002-05:00

On Friday, when we were leaving to go to Gatlinburg, my mom called and let us know that R.J. had cut his first tooth and that there was another one on the way. He now has 2 teeth and they are so cute. You can see them more and more every day. They are right beside each other on his bottom gum. I wonder when we will see something come in on his top gums. Won't that look too cute?

Weekend Getaway

2009-07-14T12:32:00.002-05:00

Here is the update I promised of the weekend getaway. Aaron and I decided to take a trip to Gatlinburg for a couple days. We rented a cabin in the woods and it was beautiful. It was decorated in "cowboy" attire with pictures of John Wayne, and Clint Eastwood and other Hollywood Western Icons as well as horseshoes, deerskins, deer heads, comfortable furniture and very spacious. One thing I remember was that the table was set with ceramic plates and matching bowls; but, the bowls were so large and deep...ready for a bowl of homemade chilli or stew. Mmmmm.

Friday we looked around in Pigeon Forge and found a few good deals. We went out to eat and went to see the "Miracle" show. It was a show. Then on Saturday, we went to Gatlinburg and hunted for a few things that we were after. I found my funnel cake, and my frogs. Then Aaron and I found some great Christian T-Shirts that were solid and held to the Word of God. That is something we have been really wanting to find.

What was really great were the many opportunities we had to share the Gospel and leave Gospel tracks. It was truly a blessing! Also, we were able to meet with a gentleman who ran a Bible translation museum and fellowship with him for about 3 and 1/2 hours. Another blessing from the Lord!! In talking with him we found out that his first wife passed away with cancer. It was good to talk to someone else who has gone through what we are going through now. He shared with us a couple things that had happened during his wife's fight with cancer such as coming completely off all medical intervention and choosing an all natural course of treatment and the Lord giving her another 6 years to be with her family. It was truly amazing. What a blessing the Lord bestowed upon us on this trip.

And that was our weekend getaway...long overdue post.

Overdue Update

2009-07-03T08:41:00.001-05:00

It's been a little while since I've updated, so I thought now would be a good time. A bit has happened since the last time I posted. Monday we went to Birmingham to see the Oncologist and let him know how treatments were going along. Things are going good and we have decided on a Chemo-therapy drug that I will be taking as soon as I am done with radiation. The name of the drug is Nexavar and Monday is my last day of radiation. That's also a good things.

Tuesday was Aaron's birthday and he turned 32 years old. I think he had a good day, despite having to take me to and from treatment. Then we went to Funtasia to play some minigolf and I had a dizzy spell and fell. I managed to scrape my knee all up, embarrass my self and feel like I ruined Aaron's birthday. We left there and the gentleman who was working, helped us bandage up my knee and gave us a raincheck. We went to our house and rebandaged the knee and composed myself. Then we decided where we wanted to eat. Aaron chose Sata Fe Steak Co. in Hampton cove. It was really good. He got an 8oz filet that he really enjoyed and I got some nachos that were reall good. All in all it was a good ending to the outing. Then we went back home and watched some of the birthday present that I got for him. I got him Way of the Master seasons 1 and 2.

Yesterday was a long day as well. We went to treatment and then had to talk to the doctor afterward. We told her about the 2 dizzy spells I had this week and the pain I've been having in my left leg and very lower back on that side. I've also been having some slight numbness in the left thigh. She increased the steroid I'm on and has scheduled me for an MRI this morning. Upon looking at the sheet that I give to admission it looks like the wrong area has been marked for the scan. We were told that I was to have my pelvis scaned and the head/brain has been marked. I recently had a head/brain scan and that is one of the areas that is being radiated right now, so there would be no need at this moment to have it scanned for this new pain. We are going to talk to admitting and see if it can't be straightend out while we are there, otherwise I am going to have to talk to the doctor and have it re-scheduled.

Aaron was able to buy the mattress for RJ's crib at our house and we were able to take him there to see and lay on it. He loved it and now his room is almost complete. The only thing missing is the border that matches the bedding and the wall hangings. We're getting there. It was a wonderful feeling getting the mattress and completing one more thing.

Thank you for all your prayers. We appreciate it and I will update again soon!!!!

Hair Today...Gone Tomorrow

2009-06-26T12:19:00.002-05:00

Today will be treatment number 5 and that means we are at the half-way mark. I haven't had many side effects from the radiation so far. One thing that is happening is a little bit of hair loss. This could be because of the chemo-embolization or the radiation. I think it may be more from the embolization because we were told that there may be some hair loss associated with it. I am expecting to loose more hair from the radiation; however, those side effects usually start about 2 weeks after the first treatment. I have started to prepare for the hairloss and have ordered some hats and a scarf. Mom and dad have even said that they would shave thier head in support. Oh my! So, that's what's been going on lately. Things are going very well and I have more energy than I've had in a while. I feel more like getting out and about and have been enjoying getting out to go to the treatments. The Lord is continuing to bless our family. He is giving me the strength, the peace and the endurance I need to want to do these things. Thank you Lord!! And, thank you for all your prayers. The Lord hears and is answering them. It is so amazing to see Him answer little requests and show us things day by day. How wonderful it is to belong to Him!!!

2 Down...8 To Go

2009-06-24T08:16:00.002-05:00

Yesterday I went to my second radiation treatment at Crestwood. The treatment process is very short and that is a huge benefit because during one part of the treatment a mesh mask is placed over my face and bolted down. If that part of the treatment were too long I would be afraid of becoming claustrophobic. I go for a total of 10 treatments; today being the third. After the treatment today I will meet with the doctor to discuss how things are going. The staff where I am going is very nice and care about how you and your loved ones are doing during this time. The nurse who is there also had cancer, so she is able to know exactly what's going on and how you may be feeling. I am thankful that she is there. The Lord keeps blessing us in many little ways here and there. Thank you Lord!!

Dry Run

2009-06-20T10:01:00.002-05:00

Yesterday Aaron and I went to the Cancer Center at Crestwood for our dry run of the treatments that I will be having. It was a pretty short, and to the point. Each treatment session should only take about 20-30 minutes tops. I have been given a barcoded card where I just have to walk in and scan the card. Then I go to a dressing room and change into gowns and wait in the waiting room for my appointment time. The actuall radiaion session is about 15 minutes. Not a very long time at all.

Everyone ther is really nice. When you come in the nurses talk to you and ask how you've been doing and ask your spouce how they have been doing. They generally care and want to make sure that they can do anything they can to make you comfortable. I am very thankful that the Lord has surrounded me with all the caring people that he has. I am actually looking forward to having the radiation treatment done and seeing what the Lord is going to do. I know the side effects might be rough, but with the Lords strenght I will endure.

Thank you all those who have been praying for us during this time. I would ask, if you would, to please pray for Aaron as he is doing so much to take care of me and RJ through this. Also, please pray for my parents as they are helping to take care of RJ and me as well. They all have been such a blessing and I am very thankful for everything they have done.

There and Back Again

2009-06-16T18:26:00.003-05:00

Well, on the 10th we made another trip to UAB again. It all started with a sarp pain on my right side where the liver is. I called the oncologist to ask what we shoul do or who we should call. We were told that we hsould go to the ER and get checked out. We decided that UAB would be the best place to go since all the doctors are there and UAB has all the medical records concerning my cancer. So, we went to UAB and they were able to see me fast and then a little while later we found out we were staying and we were set up with a room. Before going to the room I had an MRI one of the head, a CT scan. And also had an abdominal scan. We found out that the cancer has spread to the spine, the spleen, and the sack around the brain called the managie. We spent about a total of 6 days in the hospital. So, from here we move on to radiation therapy. And, just a few hours after being released from the hospital we were being set up with a radiation therapy schedule. I will only be doing radiation on the spine, and the area around the brain, Then, we move on the chemo-therapy which will then effect all the cancer cells (that's where the cancer in the spleen will be targeted). Evaluations will be done all throughout the treatments and at the end of the chemo treatment we will determini if another chemo-embilozation will be needed. It's possilbe it will not and the tumor in the liver can be resected. Or, there may be a need for another one. We will just have to see what the Lord does through all this.

The Lord put someone interesting in our path as we were riding up to our room. The gentleman who was pushing the wheel chair told us his story with cancer. He was diagnosed with cancer and it spread to different parts of his body. He had a tumor the size of a grapefruit in his liver as well a a tumor the size of a golfball in his brain. After different therapies and surgeries he is now cancer-free as of the last year. Praise the Lord that he is doing so well. The Lord use this man to give us some hope and encouragement right when we needed it. The Lord has sent a couple of people our way with similar stories of hope and encouragement.

The Lord has given another trial in which we have the opportunity to glorify his name, praise Him and see just what He is capable of doing. The Lord has given me so many people who want to help any way they can. It is such a blessing to have these people!Thank you all who have been praying for us.

Oh My Aching Back

2009-06-11T17:28:00.002-05:00

Well, so far I've been feeling petty good considering I was told that I might feel crummy for about a week. However; for some reason, I've been having back problems. I'm not sure what's going on but I have a theory. When I go to sleep at night I have a tendency to lay flat on my back and fall a sleep. I also tend to stay in that one position for a long time, so I think I'm getting stiff from staying in one spot for so long. Sooo, I've resorted to applying Biofreeze to my back before bed and anytime I happen to wake up in the middle of the night. It seems to be helping a little bit. Then when I wake up I hit the heating pad and after a little while using that, I feel a lot better. The back problem is a little bit of an annoyance, but it's getting better.

Back Home

2009-06-04T08:23:00.003-05:00

We are home from the hospital now. We have actually been home since Tuesday afternoon. The procedure went well, no complications. Aaron said that the doctor told him that they used all of the chemotherapy drug in the tumor. We were not expecting it all to be used. After I woke up from the anesthesia I was taken to my room and settled in. Monday afternoon and Monday evening I felt good and had no side effects. The most common are nausea and pain. And I was able to eat what they had brought for dinner. This was an answer to prayer. We were expecting the worse since that was what we had been told to expect. Monday night I started having a little pain... a little. Again, answer to prayer. I slept as well as I could with nurses coming in to get vital signs. Tuesday I was starting to feel a little worse. I started getting a little nauseous but wasn't really in pain. I did have a migraine that I'm still trying to get rid of today. If it's not gone in a week we are going to call the doctor back. Tuesday I wasn't feeling too bad, just the migraine. Wednesday was about the same but with a little more nausea...possibly due to the migraine. Aaron and my mom have been taking wonderful care of me and RJ. Aaron has become my personal nurse and dispenses All in all I'm good...much better than what we expected. The Lord has heard and answered the prayers of his saints. All glory, honor, and priase go to Him alone!! Thank you to those who have been praying in this situaion; we really do appreciate it.

Ah ha!

2009-05-30T10:17:00.002-05:00

I was reading a friend's blog and she had some pictures posted. She had done some neat things with the pictures and said that it was all done by an on-line photo editing site. The name of the site is Picnik. I edited my first photo and it is at the top left-hand side just above this post. I like it and I can't wait to edit more photos and see what I can do. Anyways...this was all just FYI.

Errr

2009-05-30T09:01:00.002-05:00

It never fails. I find a neat little slide show gadget to put on my blog and after a while it putters out. I don't know why it does it...it just does. So, now I'm on the hunt for another little something to put on the left hand side before the first post. Any suggestions of where I can find something, let me know. I've tried the free stuff on "Cutest Blog on the Block" but nothing caught my eye. Soooo, I'll keep looking.

Getting Prepared

2009-05-30T08:26:00.003-05:00

It seems like this week has just flown by and it's hard to believe that tomorrow evening I'll being heading down to Birmingham to have the first procedure done on the road to eradicating the liver cancer. I feel like I've waited a long time just to get started. But, it's all in the Lord's timing and not mine.

Yesterday Mom, RJ and I went to Florence to visit my grandparents. It's been close to 5 months since they have seen RJ and we wanted to make the drive before I went to Birmingham. It was a very nice trip and they enjoyed seeing us; RJ especially. RJ was a good boy and we were VERY thankful for that. For the past 3 day's he's been quite a handul...more than what we are used to from him. It also felt good for me to get out of the house and go on a little trip. As we were on our way there, Mom and I noticed a number of little wat-not shops that we would like ot stop in. We also saw a very large yardsale, that if we had not been running late, we would've stopped to parooze their wares. We said that one day we would like to just take a drive back that way to stop in all the neat stores and yardsales along the way. That's my kind of trip!

So, as the title of this post says, I am getting prepared for the first treatment/procedure at UAB. The only thing I am really hoping for, besides that it will shrink the tumor, is that the pain is less than that of the livery biopsy. The liver biopsy was the worst pain I have EVER felt. That's all I ask. Oh, and that things do go smoothly and there are no complications. Ok, there are a few things I'm asking the Lord for. The other thing I am asking is that my family be comforted and the Lord ease their minds as I am going through this. I cannot thank them enough for all the help and support they have given me. The Lord continues to bless my family and I day to day. It is so amazing just watching how He answers the littlest of requests. I can not thank Him enough for the mercy and kindness he has shown. Having mentioned the previous things, I would ask, if you would, to pray for my family and I. We truly do appreciate it and we know the Lord hears our prayers. Thank you.

Ebay

2009-05-23T15:28:00.002-05:00

As all babies do, RJ has grown out of a lot of clothes. So, I've decided to list these items on Ebay and hopefully I will be able to get them out of here and make a little money as well. I had 15 auctions listed and 4 of them have ended today. More end tomorrow and the rest end on Monday. Then, after I am back on my feet from the proceedure, I will list more items to sell. This first batch was not quite half of what I've got to sell. There are still 2 boxes left of things that need to make their way out of this house. Then, I need to go to my own house and make sure that I've got everything from there that RJ can't use any more.

Excited

2009-05-17T16:45:00.003-05:00

I'm excited because I've ordered a few books that should be here early next week. One of the books I ordered is the study guide to a book I'm reading now called "The Excellent Wife" by Martha Peace. I highly recommend reading "Attitudes of a Transformed Heart", also written by Martha Peace. She is very scripturally sound, and the book addresses things that every christian goes through, what the Bible says about them and how we are to deal with them. I also ordered "The Valley of Vision: A Collection of Puritan Prayers and Devotions" and "A Gospel Primer for Christians: Learning to See the Glories of God's Love", both of which were recommended to Aaron and I. From what I've read of "The Valley of Vision", it's going to be a great book.

So, that's my excitement. New books!!

Results

2009-05-14T18:40:00.002-05:00

Today Aaron and I had a good visit with the doctor we saw today. Here is what happened. There was a lot of talking and explaining of what the procedure is. Basically it's similar to a heart cath, where the catheter is fed to the liver via a main artery in the groin. From there a chemo-type drug in a solution of oil and iodine is injected into the liver and then the artery is sealed off. This procedure is called T.A.C.E. if anyone is REALLY interested. The procedure only takes a couple of hours and I will be in the hospital overnight. Statistically, less than 50% of patients see a reduction of the tumors to which this procedure is done...but, we know that the Lord cares nothing about statistics and He can do what ever He wants and he will be glorified. Please pray that we continue to look only to the Lord for the strenght, hope, peace and wisdom as we continue to walk through this trial. Thank you for your prayers this far.

Pictures

2009-05-13T22:04:00.010-05:00

Mom, Aaron, RJ and I went and had pictures taken today. I was a good day. RJ did better than I thought he would do for his very first photo session. I am going to attempt to load some of them on here for you to look at.

Prayer Request

2009-05-13T21:57:00.002-05:00

Tomorrow (Thursday the 14th) Aaron and I are going to UAB to talk to the doctor who will be doing the chemo-embolizations. These are the procedures to shrink the tumor to a size easier for resection. This is an answer to prayer...actually, answer to prayer offered to the Lord just last night. With this visit, we are hoping to be told the date of the first treatment, how long I will take to recover, how long I will be in the hospital, how long until we see if anything has been done by this procedure, and if we will be doing more. A lot of questions....that need answers. So, if you would please pray that we have a safe trip down, and that we remember these questions to ask and get easily understandably answers, we would really appreciate it. The Lord has been truly blessing us through this trial in many ways; big and small. I can't tell you how much it means just for someone to ask "How are you doing?". So, I thank you all again for your prayers, and kind words of support. They are really appreciated and know that the Lord sees the kindness you have shown to another sister in His church. I love you all.

Cuteness

2009-05-09T15:37:00.006-05:00

I was going through my pictures for Ebay and forgot I had taken these. I thought they were pretty cute...but, I'm biased.

Mother's Day Flowers

2009-05-08T20:15:00.004-05:00

Aaron sent me some flowers for Mother's Day. They are so beautiful and he picked them out himself. He did a really good job!!!

Excited

2009-05-07T22:41:00.002-05:00

Excited? You may ask...why excited. Well, I am excited to be starting a study using the book called "The Excellent Wife" by Martha Peace. I have enjoyed the one book I have read of hers already called "Attitudes of a Transformed Heart". The book that I have read was very biblically bound. I found her to be a very solid, biblical author that only gives instruction based on the Word of God. I highly recommend reading one of the two books I've mentioned. I will let you know how the study is going.

Well, that's what the excitement was all about. Hehehe!!! Can't wait.

Endocrin...who?

2009-05-06T10:59:00.002-05:00

Yesterday Aaron and I made another trip to Birmingham's Kirkland Clinic to see an endocrinologist. I may have mentioned before that I have hyperthyroidism. My family doctor wanted me to see an endocrinologist to have the input of someone more knowledgeable in this area, due to the other health issues that are going on. This doctor was very good. He took the time to explain what was happening and what the possible resolutions are. He even used the white board that we see in most of the examination rooms at the Kirkland Clinic. So...what is going on? What he said was that based on the information he had, more than likely I have Grave's Disease. There are more tests he wants to do just to make sure. There is something called an Uptake Scan that he would like to have done and I've got to have my family doctor get that scheduled. And, what do we do if it is? If it is then the thyroid would have to be removed either surgically, or by way of medication. The medication used to "dissolve" the thyroid is a type of radioactive iodine. It is an easy option...however; since I've had a few CT scans (done with an iodine contrast) and may be scheduled to have more, the amount of iodine in the medication would not do anything to the thyroid. The next option, and a very do-able one, is to surgically have my thyroid removed. Either way is fine by me. It is depending on how the oncologist wants to move forward. In the meantime, the endocrinologist prescribed some medication that will help with the symptoms I'm having. This means no more hot flashes and night sweats...hopefully.

Thank you for all your prayers and words of encouragement. We really appreciate it.

The Other Man in My Life

2009-05-02T09:40:00.002-05:00

Well, technically he's not a man. My RJ...where to begin? How about in the mornings when he greets me with a smile in his pack and play where he sleeps. Or how he carries on a conversation sometimes before we go down stairs. When I pick him up from a nap and sit him on my lap he proceeds to tell me what he dreampt about...or so that's what I think. And he has a smile that when doing so, he scrunches up his little face. His smile and laugh are enough to melt your heart. Some of the littlest things make him laugh. He has a way of looking at you...that look that can make you give in to any request he may have. Mothers, I know you know it...grandmothers, I think have lost their ability to fight it. Some of his best conversations are on the changing table...don't know why. And when he rolls over, lifts his head up and smiles at you. This is just some of the things about my RJ. Our precious gift from God.

The Love of Food

2009-05-02T09:16:00.002-05:00

Flat out...RJ loves food. He eats his rice cereal and looks like he's having spasms in his arms and legs. He does the same thing with sweet potatoes. I'm curious to see what he does with the peas, green beans, and carrots we got him. As well as food, he takes all medicine as if it were food. I am thankful for that. I'm sure there there will be a food that he just doesn't like; I wonder what that one will be. Aaron says Mexican because that's all I ate when I was pregnant with him. Either that or cheese. Hmmmmm.

Rollin', Rollin', Rollin'

2009-04-26T15:12:00.002-05:00

RJ is now rolling over on his own, from back to front and front to back. For the longest time he was trying to roll over from back to front and would get very frustrated when he wasn't able to do it. We would keep helping him and show him what he needed to do, then the other night he was playing on the blanket on the floor on his back. Then, a couple minutes later I looked down at him and he was on his stomach. It was great. Now he does it at will. The only thing is, he's getting frustrated still when he gets to his stomach. I'm not sure if he needs something to intrest him while in that position or what. Any suggestions would be appreciated.

UAB Again

2009-04-20T17:17:00.002-05:00

We went to UAB again today. Last week we decided that it would be good to see an oncologist just to make sure we weren't making any hasty decisions and that we were given all options. This was a good visit. We saw two doctors; one was a student learning about cancer, the other was the primary oncologist. They were both nice, listened, and made you feel like you were a person with feelings. The outcome of the visit was this: I am going to get the CT scan from MD Anderson and have it sent to this doctor. He is still suggesting going the route of trying to shrink the tumor and then removing it. He did suggest other forms of treatment besides chemotherapy. Unfortunately I can't remember what they were. The other good thing about this appointment was that the doctor talked as if he was going to be heading up the procedures and my overall care in regard to the cancer. We are very happy with this visit and feel like someone is taking over and taking charge. Thank the Lord for how he works.

Not Much

2009-04-15T09:44:00.002-05:00

I haven't had much to post about the past few days. I've just been trying to get back into the swing of things as well as rest here and there. Today is a day of phone calls. I've got to call Birmingham and discuss starting the process to have the tumor removed, as well as calling to get the CT scans from TX. There are a few other calls to be made about various health issues. Fun, fun, fun. The most important is the call to Birmingham.

RJ is doing great. He's blabbing, eating, and looking cute. Sometimes all at the same time. He has a little cold right now, but nothing bad and it really isn't affecting him. He's a good baby.

Leavin' on a jet plane...

2009-04-10T15:39:00.002-05:00

Tomorrow we will be. Today was our last appointment with the doctor. And, as it turns out, he said the same thing that the doctor at UAB said. Also, he does no see any cancer anywhere else. Where do we go from here? We go back home; we make an appointment with the liver surgeon at UAB and we get started with the procedure to shrink the tumor so that it can be surgically removed. That is where we go. Do I feel that this was a good trip? Yes. It further confirmed what we were already told and the action that needed to be taken. The only thing I would change would be the personality of the doctor we saw. I know he is a good doctor and knows what he's doing...but I like for a doctor to have more personality and talk to you like you are a human who does not see, talk and think about cancer every day. That's just me, and that is the ONLY thing I would change. The Lord has answered our prayers that the cancer has not spread to other parts of the body. Thank you Lord!!

We are excited to be going back home tomorrow. We can't wait to see R.J. and my parents and be in a familiar place again. I am also praying that this cold that keeps hanging on will give up soon. RJ does not need to get sick and he has been very fortunate not to get sick with everyone in the house being sick around him.

Thank you so much for all your prayers. We do appreciate it. We have still got a long road ahead, that even though we may not know what will happen, the Lord in his sovereignty is not taken by surprise, nor does anything happen without him allowing it. What a wonderful God we have.

What a day!

2009-04-08T21:22:00.002-05:00

It was a day like no other. We arrived at MD Anderson around 7:30 am did paperwork, got vitals, saw the doctor, did lab work and got a chest X-ray. That was done about Noon. The doctor was not what I had expected. We waited for him for close to an hour and when he came in he didn't even apologize for our wait. He was very cut and dry, just like we were any other case. I know I'm nothing special and he does this every day, all day long...but, we don't. So, I was expecting him to be a little bit more personable. We have an appointment to see him again on Friday and go over the labs and CT scan. Maybe things will go differently.

After we got lab work done and chest X-ray, we went to the first floor and ate at the cafe. I needed food at that point. Then we went back to the hotel and relaxed for a couple hours. We had to be back at the hospital at 5:20 for the CT scan. We arrived there along with dozens of other people. This is where the day really took its toll on me. I had to drink contrast, then I went to another room and put on scrubs, went to another room with a lot of the same people I saw previously while drinking the contrast and had an IV put in. I then had to drink a little more contrast...just couldn't get enough! Hahaha. And then came the actual scan. It took about 20 minutes and then I was free to go and have the IV removed, change clothes, and go back to the hotel. I did not like this part at all. We were there from 5:00 until 9:00.

Aaron and I are waiting for the room service we ordered to arrive. This will be the second meal I've had today. Tomorrow will be better. We are planning to go to one of the museums that are close by. Not sure which one, but, I know we will enjoy it.

Thank you again for all your prayers. We are very thankful for them. The Lord has blessed us on this trip with being able to relax when we can, being seen by the doctor today, going to the zoo yesterday, and what ever he has in store for us the rest of our time here. We are truly blessed.

Ugh

2009-04-07T20:01:00.003-05:00

Well, we are safely in Houston. The flight was not bad. The plane was smaller than I had thought it would be but it got us here safely. My left ear is still plugged up. I've tried yawing, chewing gum, and even the medicines I've been taking for my cold have not been working. Oh well. I imagine the day before we leave it will get back to normal. HA! Today we went to the Houston Zoo. It was nice to get out. We did get a little sun, so right now we are a little red. Aaron pushed me around in a wheelchair the whole time, so he got his exercise for the day. The only drawback was that today was the day where all the schools planned their field trip to the zoo, so there were about 100+ first and second graders wandering around. But, after 12:00 they all seemed to disappear. The Houston Zoo was nice, but we still like the Birmingham Zoo the best. And, one of the most surprising things is that we made it out of there without buying anything from the gift shop! That's a first for us.

After the zoo, we came back here and Aaron went and found some cough medicine and night time cold medicine for me so I could sleep tonight. After resting for a little while we decided that it was time for dinner. So, one of the gentlemen from the hotel hailed us a cab and we proceeded to a suggested Mexican restaurant. It was pretty good...however, we will see what happens tomorrow. We were a little shocked at the cab fare...$11.00 each way. Supposedly it was only 3 miles away. Oh well.

Tomorrow is the big day. The day of testing and finding out as much as we can...the whole reason for this trip. I pray that I feel better in the morning and that my cold has gotten better. I also pray that we will get some answers while we are here and that we won't have to come back for a second trip to hear the answers. There is a chance that we will get to see the doctor again on Friday, but that is still up in the air. Either way, the Lord has it all in His hands and in His plans. We will see what He is going to do with this visit. I will let you know what happens later tomorrow or Thursday. Thank you for all your prayers. We really appreciate it.

One final note...if you would please pray for RJ. He seems to be a little fussy and my mom is not quite sure why. He's not showing signs of getting a cold, possibly more teething or just missing mom and dad. But, please pray for both RJ and mom. Thank you!

Ah Ha!!

2009-04-01T11:10:00.003-05:00

So, a couple days ago RJ was being really fussy. Our "really fussy" is probably the average fussy for other babies. We are very blessed in that manner. Anyways, this morning I may have found the reason for all the uproar. It appears on his bottom gum that he is cutting a tooth. I can see the little tooth trying to peek out. So begins our experience with teething. Yeah!!

Prayer Requests

2009-03-31T20:09:00.002-05:00

Some have asked specifically what they can pray for and often times I don't remember some of the little things that I really do need prayer for. So, I'd like to take a minute and ask those who are praying to pray for these things...if you wouldn't mind.

That the Lord would give me physical strength walking places.
That we would have a safe trip to and from MD Anderson.
That there would be no problems with flying. (I often have ear problems for a few hours up to
a couple days after flying)
That the travel arragements go smoothly and everything arranged is how it should be.
That RJ would be good for my parents and there not be any emergencies.
That my mother will have the strength, patience, and feel good to take care of RJ.
Pray for Aaron as he is going through this as well. That the Lord give him strength, patience, and endurance while we go through this.

Again, I thank you for all the prayers. I know the Lord is hearing and answering them and with His strength we will get through this.

Getting Closer

2009-03-31T19:57:00.002-05:00

Well, it's getting closer. On Monday we are leaving to go to MD Anderson and hopefully we will leave there will more answers than when we came. I think I have all my ducks in a row. I have purchased a plastic accordion file so I can stay somewhat organized. This is hard for me. I made the phone call to the nurse (who has been excellent in helping me!!) to make sure I've got everything I need to bring with me. I have everything...and then some. Better to have more information for them than not enough. We've got all our travel arrangements settled...and as I type this I ask for your prayers that things go smoothly and everything that the travel itinerary says is actually what happens at the airport and the hotel. I'm also considering bringing a wheelchair since it's hard for me to walk long distances.

If I had saved them, I would have a pretty impressive hospital band collection. I was just thinking of that because I had to get some lab work done...and they put one one me!!! Oh my!!

Liver Biopsy

2009-03-23T19:04:00.003-05:00

Well, we are finally back from my liver biopsy. It was scheduled for Friday. There were a few little issues surrounding it. First we were going to biopsy the tumor, then the doctor decided that he wanted to use nuclear medicine, then after he talked to his colleges the final decision was made to biopsy the tumor. Oh boy, was I not ready. I had heard that you were awake and I was ok. However; when the procedure started and there was some pain...that's where things went wrong. The doctor had to take 2 specimens because the first one was not big enough. The procedure didn't take that long and then they rolled me out of there. A few minutes later I was in horrible pain. My stomach was hurting where they needle was inserted, my chest was hurting and I was altogether uncomfortable. We went upstairs to the room I was going to be in and I was screaming. You know I am in pain when I am screaming. I don't know how long it took, but it was too long, before pain medication made it to me. So, from Friday afternoon through Sunday night I was pretty much ged up. One night had Aaron and the nurse pretty scared. My pressure went way down and the color of my lips were the same color of my skin. Monday, I was feeling a bit better. I was no longer taking demoral for pain and I was more coherent than I had been the whole time I was there. We prayed a lot and read the Bible a lot together. The Lord brough us through this. Now, our appointment to MD Anderson has been moved out to April 8th and all the travel arrangements have been moved out with no problems. Thank you for all those who have been praying.

Strange Dr. Appt.

2009-03-19T20:27:00.003-05:00

Today I had a bit of a strange doctors appointment. Apparently my thyroid is quite high and I have been loosing some weight...nothing drastic. Well, the medication that my doctor wanted to put me on she is not able to because of what it may do to my system. So, we are going to see if the doctor in TX can do anything, and if not she will get the ball rolling to see and endocrinologist here in Huntsville. In the meantime...and this is the strange part...she told me to eat, and eat a lot! Eat high calorie foods! How many doctors do you think tell their patients this?? I think it's a bit funny. She encouraged me to go have an Oreo shake. Ha!!

Liver Biopsy

2009-03-18T13:55:00.002-05:00

Well, the liver biopsy went...actually it didn't go at all. I had lab work done prior to the procedure and it showed that my white cell count was pretty low. Because of this, the doctor decided not to do the procedure. Now, I just need to find out why my white count is low. It could be because of the cold I had about a week ago. I am praying that is what it is. This in no way sets anything back with my appointment with MD Anderson. They may decide to do one while I'm there...only God knows. Maybe this is why the whole week I kept forgetting that I was having it done...because I wasn't having it done. Hmmmm.

Eating 101

2009-03-17T20:28:00.003-05:00

R.J. loves to eat!! About 2 weeks ago we started feeding him rice cereal. Mom warned me that sometimes babies don't care for the texture at first and may spit it out. Well...not R.J. He loved it. And every time he eats it he loves it. He knows exactly what to do...he opens his mouth as the spoon gets close. Since he liked rice cereal so much, and since it looked like he wasn't having a problem with it...we decided to start him on bananas. I was not sure how he would like them since he had gotten used to rice cereal. This kid loves food. He ate a whole jar the first time. He was getting soooo excited. It was wonderful. I love to watch him eat. It makes me feel good that he's eating good. However; a whole jar was probably not a good choice. The bananas made things move through him a bit faster. Oh well, now we know. I love it!!

Travel Arrangements

2009-03-13T16:29:00.002-05:00

Well, today we made travel arrangements for our trip to MD Anderson the week after next. It was relatively easy since I let my dad do all the talking. I don't do so well when it comes to making travel arrangements. He knows all the important questions to ask. But, we are all set with airline tickets and hotel reservations. Just pray that we don't get lost or mixed up in the Houston airport. That's another thing I don't like...big airports...and the fact that I can't walk far. Well, the Lord will give me the strength to do this. He has thus far.

Update

2009-03-12T19:41:00.002-05:00

Well, today I went to the GI doctor and was able to schedule my liver biopsy. Wednesday the 18th is the date. And, if all goes well, the lab reports and pathology slides will be at MD Anderson by Friday. The BC/BS patient advocate contacted me today as well. She will be following my case and checking in here and there. She said that she would also be available for doctors and hospitals to coordinate benefits. Now, the only thing I have to get taken care of is getting flight reservations as well as hotel reservations. The hospital has a department that can help me do all that and they get discounts on certain airline carriers. The Lord is really working out the details.

An Option

2009-03-11T13:34:00.002-05:00

Aaron recently told me about a woman who had liver cancer some time ago and has been cancer free. A friend of ours was able to get her email address and some information about her. Apparently she has been cancer free for about eighteen years and attributes that to God's will for her life as well as the treatment she received in Japan. I have heard about this treatment and have heard that is has been an effective treatment of cancer. From the testimonials I have read, those who were treated in this way all had liver cancer. Now, I know we are going to MD Anderson, and I know that when they tell me my treatment options that most likely, I will say "go ahead". I just know me. However, I also know that I am not opposed to this treatment in Japan and from what I've heard, you cannot go through chemotherapy or radiation before taking it. You can, however, be treated in those manners afterward if it doesn't work. I'm sure we all know how doctors can be...they don't necessarily want you to try non-conventional treatments.

The main reason I started this post was to say that I have been in contact with the woman who went to Japan and received treatment and I hope to speak more with her to make a a better informed decision. So, if you would please pray that I am able to talk more with her and that the Lord lead us to the right method of treatment, I would appreciate it.

Making Phone Calls

2009-03-11T13:28:00.003-05:00

Today is a day of making calls. So far I've gotten pretty far. First I called MD Anderson and talked to the nurse who was reviewing my medical information. I now have an appointment set up for March the 25th. They have asked me to get a biopsy here in Huntsville. I am waiting for a call back from my GI doctor to see if they would set that up for me. I have also called the cardiologist at UAB to obtain medical records regarding the heart catheterization and am bringing them with me to MD Anderson. I also called the BC/BS representative who would be my Patient Advocate (or something like that). She should return my call sometime today. Now, I've just got a couple more calls to make and I should be done making calls and then be waiting to receive calls. Whew! My only problem is that I don't always take the best notes when I have these telephone conversations. So, it may seem small...but if you would pray that I am able to write down the pertinant information, that would be great.

Thanks!

A Good Surprise

2009-03-10T18:07:00.002-05:00

Today at work there were two representatives from an insurance company. They had been at work a year ago and I signed up for some supplemental insurance. I didn't remember what I signed up for; the only thing I could remember was additional life insurance. After talking to them I found out that I had signed up for a cancer policy as well as a hospital intensive care policy. I am thankful that the Lord brought those people to our workplace to offer the policies that they did. It just further shows me that He is watching every aspect of our lives.

It's Been A Little While

2009-03-09T07:59:00.002-05:00

It's been a little while since my last post. Sometimes I'm just not sparked to write. However, I thought I would share what's been going on. We have decided to go to MD Anderson for another opinion and treatment. I would like to go to them for treatment because they are #1 in the US for cancer treatment. Last week I spoke to a gentleman in the gastrointerology department who told me what I needed UAB to send to them as well as what I needed to have in hand for when I do come.

I also contacted the Blue Cross Blue Shield patient advocate (or whatever they are called...I cannot remember) to find out if MD Anderson is in their list of providors as well as what other benefits they may pay for. A friend of the family who has BC/BS of TN said that they have been known to cover airline expenses as well as hotel expenses. However, that is TN and not AL, but I was expecting more help than I got. At the advice of another friend I am going to make plans to go to their office in town to speak to someone. Considering the amount of premiums paid to this company annually...they should have someone who knows something and can help me.

A few days later I got a call from a lady who said that she was the one who was handling my referral. I got her name and number and I decided to contact her. It was a little before 1:00 pm, so I expected her to be at lunch and I would leave her a message. When I called, she was at her desk...at lunch...and said she would call me back. She didn't relay this message in the nicest tone of voice. I prayed that the Lord would help me will all this and just let me speak to a person who was nice and who coould help me. That's all I wanted...just a little help. Later on I received another call from MD Anderson from a different woman who said that she was now handling my referral. She was much nicer, proceeded to get some information from me, and told me that she was giving all the information and records to the nurse. I was so thankful. I am praying I will hear something today or tomorrow. I don't want to be a pest...but I do want to get started with treatment. And even as I type this...I know that my timing is not God's timing and patience is necessary.

Thank you to everyone who is praying. We really appreciate it.

Firsts

2009-03-01T18:59:00.002-06:00

Well, today was a day of firsts. RJ has his first cold. So, far it's not that bad and he's not being fussy. He has a little bit of a runny nose and a cough and that's about it. I've got to call the pulmonologist on Monday to see how much of the steroid I have to give him. He was given the steroid to keep the cartilage over his voice box from getting inflamed from his cold. Also, today was the first day I have ever had church cancled where I go to church. I attend a very small church and I believe many of the people have to travel a little ways to attend. Last night and this morning it snowed and made traveling on the roads a little bit risky. So, church was cancelled. This may have been a good thing in the long run since RJ does have a cold and it really was best that he didn't get out in the weather.

Pictures

2009-03-01T18:57:00.001-06:00

I decided to post some pictures on my other blog: Picture It All If you have a minute, take a look.

Second Opinion

2009-02-28T11:54:00.002-06:00

Aaron and I along with the rest of my family have decided that it is in our best interest to consider getting a second opinion. Please note that I have said "consider". This is something that we must pray earnestly about. Should the Lord decide this is His will, we would like to move quickly on the process. However, we must understand that the Lord may have put us with the right doctor now and this is where He wants us to be. I am asking that you please pray with us about this. Two of the places we are considering are Duke University Hospital and Univ. Texas MD Anderson Cancer Center. Also, this Sunday, one of the owners of the company I work for is coming over. His wife passed away a little over a year ago with brain cancer and we are hoping to get more information concerning getting second opinions and what we might expect in this process. He was very instrumental in his wife's care and did an excellent job of being her advocate with doctors. I would consider asking if he would help us in the same manner. That may be a lot to ask.

I ask that you please pray with us on this matter. And, thank you all who are praying for us. I cannot tell you just how much we appreciate it.

Last Sunday

2009-02-26T16:48:00.002-06:00

Jame 5:14-15: 14. Is anyone among you sick? Then he must call for the elders of the church and they are to pray over him, anointing him with oil in the name of the Lord; 15. and the prayer offered in faith will restore the one who is sick, and the Lord will raise him up, and if he has committed sins, they will be forgiven him.

Last Sunday our pastor and the elders of our church came over to the house and we had a time of prayer, laying on of hands and anointing with oil. The first thing we did before I was prayed over was to have a time of prayer just giving glory to God and praising Him. It was wonderful just acknowledging the Lord, praising Him for who He is and what He has done and what He has yet to do. He is the one to receive glory and praise in all this. After this the pastor, the elders and Aaron gathered around me. The pastor poured a little oil on my head and then placed his hands on my head while the elders each laid their hands on my shoulders. Aaron was kneeling in front of me holding my hands while everyone offered prayers to the Lord. It's hard to explain exactly how it felt...but there is nothing like having Godly people come and pray over you. It's quite different then having people tell you that they are praying for you. After praying we sang a chorus. It was a wonderful time of praising God!

Another Day; Another Doctor; Another Diagnosis

2009-02-25T19:45:00.002-06:00

Today was our trip to UAB to see the liver surgeon concerning the spot on my liver. Well...the spot is not a spot. I had been told how large it was but did not really understand until I was able to see the CT scan and have it explained to me. The spot...a tumor to be exact, is approximately a little over half the size of my liver. The only way I can put it is to be blunt...the tumor is cancerous. The first thing we are going to do is a catheterization to stop the flow to the tumor and try to shrink it. After about 6 weeks I will be re-scanned to see what has happened. Hopefully it will have shrunk some. Then after that the plan is surgery to remove the tumor. Before all this, the doctor is going to consult with the cardiologist there to get an idea of what the risks and implications would be to the heart. The ultimate plan is to remove the tumor; allow the liver to regenerate and grow with no evidence of cancer regrowth. The prognosis that was given was 20% chance of survival to 5 years. If there is no cancer after 3 years then it would be considered completely removed. We are praying for the most positive outcome. We know that the Lord is in control. He is soverign and is on His throne. He is to receive all praise and glory no matter what happens in this situation. Thank you for all those who have been praying and I ask that you would continue as this is going to be a bumpy road for us.

Sorting it all out.

2009-02-18T17:12:00.002-06:00

If you've been reading my blog the last couple weeks you'll know that I've got a few things going one medically. Last Monday the 9th of February, I went to UAB for a heart catheterization and was put on a pressure medication. For the last week I have been feeling worse and getting more tired and the tiredness has been lasting longer. I find I have to sit down after doing simple tasks like making RJ a bottle. This afternoon I talked to the cardiologist at UAB who told me to stop taking the pressure medication. We will see how I feel over the next week and give him a call. While at the hospital for the heart cath, some lab work was performed that indicated I have Hyperthyroidism. This may be playing a role in things; however, my thyroid was recently checked and was normal. The cardiologist is going to call my GP and we are going to go from there. Also I mentioned to him that I have an appointment next Wednesday to see a liver sergeon at UAB about the spot on my liver. We were both in agreement that any considerations for another open heart surgery would be made after both the thyroid and liver issue has been taken care of.

Yes, going through these things have been a little difficult. I would say, however; it's been very hard trying to keep everyone in the loop so that we look at these problems from every angle. Oh so many doctors and oh so little memory.

Thank you for all your prayers.

Pictures

2009-02-15T17:36:00.002-06:00

Just thought I'd post some pictures I took. Hope you enjoy.

Update

2009-02-11T17:18:00.002-06:00

It seems like I'm constantly in a doctor's office. I am actually starting to get used to having blood taken and IVs started. This time I didn't have either of the two done. I went to my GI doctor who is treating me for the Hep C. The reason he wanted to see me was concerning the spot on my liver. It measures approximately 13 cm, which is a little over 5 inches. Our game plan on this issue is to schedule an appointment with one of the liver surgeons at UAB. They will run the appropriate testing to see if this is just a benign spot or if it is cancerous. After we get to a firm diagnosis then we will discuss treatment of the Hep C. We are waiting because the viral load is low and the strain is the most common and easiest to treat.

Please continue to pray as we are going through some rough things. I know the Lord is sovereign, has a plan and will get glory through this situation one way or another.

There and back again.

2009-02-10T12:53:00.002-06:00

We are back from our trip to UAB. The easiest way I can describe it is...informative. I underwent a heart catheterization but did not require angioplasty or a stint. In my opinion it is a little disappointing because I was hoping that they would find something definite that would fix things. However, my plans and expectations are not the Lord's. So...He has put us on a different path with a different game plan. I have been prescribed a heart medication to help the flow of my aortic valve which is in the homograph used to repair my condidtion. We are going to try this for a little while and see if there is an improvement. Should there be no improvement, the next option is surgery. The homograph is now 21 years old and has some calification as well as some other things that were noted. Should surgery be required, the homograph would be repleaced and other things would be repaired all at the same time. The cardiologist informed us that it was not unusual to have a homogrph replaced multiple times. And considering the advancement of medicine and surgical techniques from 21 years ago, I feel confident that the surgeons at UAB are more than capable should we have to go that route.

Now, this is just one part of a 3 part issue... we are also dealing with Hep C and I am to see the GI doctor this week. I am assuming that he is going to discuss treatment and hopefully a biopsy of my liver. I will admit that I get a little nervous of the treatment and how it will affect my heart as well as the side effects. But, I can't not be treated. The third part is another issue that I will get into later as soon as I see my doctor to evaluate what's going on. I'll keep you informed.

I cannot thank you enough for all your prayers and again I am asking for continued prayer.

New Camera

2009-02-06T19:47:00.008-06:00

Yesterday I bought a new camera. And, the best part was that it didn't cost me anything. My work gave it's employees gift cards for Christmas and I just now got to use mine at Sam's for this camera. I got a Nikon D60 and have A LOT to learn. I was able to take a few pictures today just to get the feel of it. I have never owned a SLR camera and wasn't sure if I would be comfortable holding it. There was no problem. Here are the best pictures I took...again, I have a lot to learn and a good thing is that 2 DVDs were provided with the camera on how to use its basic functions and its advanced functions. I hope to be posting many more pictures on my other blog.

The last picture is the view from my parent's front porch. I need to learn how to use the different settings. I'll get there.

Update

2009-02-03T19:21:00.002-06:00

Well, here's what's happening now. Last Thursday Aaron and I went to the GI doctor to discuss our plan for treating the Hep C. It was a good visit and this doctor happens to be the same one Aaron was seeing when he had his gallbladder taken out. He ordered more work and an abdominal scan. So, on Saturday we went to Crestwood Outpatient and had that done. Right now my right arm looks like I've been man-handled. The nurse who took my tried to get a vain and it rolled on her and she took it as a challenge.

Tomorrow is my appointment with the pulmonologist. I'm really not sure what to expect. I'll just go and tell him what's going on and see what he has to say. I'm hoping he can make the pain in my right shoulder go away.

Monday is my heart cath and I am scheduled to be the first one...at 6:00 am. Aaron and I are considering going down the night before and staying in a hotel. We were told to be prepared to stay the night at the hospital, but since we are the first ones it's possible we will be going home that same day.

Thank you for all your prayers!!

Resolved

2009-01-28T11:27:00.001-06:00

This morning I called Crestwood to try one more time to get the referral to the pulmonologist. The girl I spoke to was very nice and informed me that the discharge papers I was given were my referral. That information was not given to me the first 2 times I called. I then called to make the appointment. When I called the first available appointment wasn't until February 11th. After explaining to them that I was scheduled for a heart cath on the 9th they were kind enough to work me in on the 4th! Thank the Lord!!! And thank you to all those who have been praying for us during these times. We really appreciate it!

Outraged

2009-01-27T22:59:00.003-06:00

A couple weeks ago, at the direction of my cardiologist, I went to the emergency room because I was getting worse as far a getting short of breath and tired. I put some details about this visit on a previous post; however, right now I am a bit outraged and disappointed with Crestwood. I have never had a problem with them and prefer to go there but at this point I'm starting to change my mind. When I went I was referred to a pulmonologist. This was 2 weeks ago and they have yet to send the referral to the doctor so that I can make an appointment. I am upset, first because the referral has not been sent and I can't see how that's a difficult thing to do, and second because the doctor at UAB wanted me to see the pulmonologist to get any information he could before the heart cath. Now we are about 2 weeks away from the cath and I would be very surprised if we were able to get an appointment in time. I am going to try again tomorrow and continue to pray about it. Any suggestions as to who I should ask to talk to about this?? Head nurse, doctor who saw me, manager???

Clearing off the plate

2009-01-27T22:37:00.003-06:00

With all that is going on with our family, I told Aaron that I just wanted to get one thing taken care of and off our plate and today that happened. Today we took RJ to the pediatric pulmonologist. We saw Dr. Mehesh, who was a very nice doctor, took a lot of time with us and made sure we understood his diagnosis and that he answered all our questions. Also, he was kind enough to print out some information on the diagnosis. So, here is what we found out: RJ has what is called laryngomalacia, which is a congenital deformity where the soft, immature cartilage of the upper larynx collapses inward during inhalation, causing airway obstruction. His breathing is noisy and worrysome; however the doctor informed us that he will grow out of this. He has been given medicine for reflux and also something that should take care of his problem of spitting up 2+ hours after feeding. Also, he told us that should RJ get a cold we need to call him and he is to be given a dose of steroids. The reason is that the upper larynx can become swollen and cause further breathing problems. We were given the prescription to be filled today so that we would have it if or when he does get a cold. I love the fact that this doctor was thinking ahead! Thank you Lord for clearing one thing off our plate.

Another Hurdle

2009-01-26T21:17:00.002-06:00

The Lord has put some trials in our family's lives lately. He has a plan...I don't know what it is...He is sovereign and on His throne and works all things for the good of those who love Him. These things are for our good..to draw us closer to Him; to make us rely totally on Him; to mold us to His image. So, what's the hurdle you might be asking. I had recently had my liver enzymes tested and today I got the results of the tests. I was informed that I have Hepatitis C. As best we can figure out, it was passed to me in one of my 3 heart surgeries when I was a child. The virus was not isolated until 1989 and testing was possible in 1992. My last surgery was in 1987. I have an appointment with a GI doctor this Thursday to see where we go from here. Also, RJ has is appointment with the pediatric pulmonologist tomorrow morning. And we have the heart catheterization scheduled for February 9th. I ask that you please keep us in your prayers as we tackle all of our health issues. Thank you.

UAB

2009-01-20T18:13:00.003-06:00

Today was my cardiologist appointment at UAB. We left the house at 5:15 and made it to the Kirkland Clinic at 7:25. We made good time. We were brought back to the exam room and the doctor's assistant got some information, asked a series of questions and said that he would talk with the doctor and she would be with us in a few minutes. A few minutes later the doctor comes into the room and informs us that she is not the right doctor for us to see. She specializes in angioplasty and stents and felt we really needed to see someone who specializes in congenital defects. While we were there she was able to fit us in to see one of the pediactric cardiologists; therefore it was not a wasted trip. We were very thankful for that.

After getting some papers to take with us we made the long walk to another building and made our way to the office. It was surprising to see that this office had been named in honor of a cardiologist who I used to see when I was younger. It wasn't long after we got there that they called us back and got an X-ray and we waited in a room. The doctor we were to see was in the OR and would be in shortly. Our doctor was Dr. Romp, a very nice doctor who was very attentive and only wanted to get to the bottom of what was going on. That was such a relief. After doing an echo cardiogram that looked good we sat down and talked about our options. The game plan is to have a heart catheterization to get further information and take action to correct the pulmonary artery stenosis. Depending on what they see and if they can correct the problem at hand determines what we do next...it could be nothing or surgery.

Further, the doctor also recommended that I still see the pulmonologist so that we can look at it from other angles and the more information we have the better. All in all I was very pleased with our trip and thankful that we were listened to and given a course of action. The Lord was with us the entire time working out the details. He is sovereign and in control.

Thrifting

2009-01-17T17:05:00.002-06:00

Today Mom and I went to two thrift stores to see what we could find. We were able to find a lot of good deals. My goal was to find some clothes, and that I did. I wound up getting about 6 tops, 3 pairs of pants, and 3 matching sets. I was able to get all this for a little over $50. You would be hard pressed purchase 2 items brand new for that amount. I also found a little Vtech Pull Phone for $3. Mom hit the toy jackpot. She walked away with a Tigger doll that does cartwheels, a Tonka truck that opens up and you can push buttons to learn to count, a Leapfrog Discovery Ball that teaches the alphabet and plays music, a Vtech See Me Go Driver that has a TON of buttons and makes all kinds of sounds and music, a Sesame Street electronic toy will lots of buttons that make sounds and music and a beaded ball that you move the beads around the wires. She got all those toys, and they all work, for $20. Needless to say, we like thriftstores. I can't see the point in buying all new toys when there are perfectly good used ones out there. I feel the same way about clothes. One of the tops I got still had the tag on it that said $40. I paid $5. When going to the thrift store I can afford to buy name brand clothes that will hold up. This may be one way that I can be a good steward of our money. Hooray for thrift stores!!!

Fluke

2009-01-16T22:23:00.003-06:00

I had to get this down before I forgot. This evening R.J. was sitting in the swing and he lost his binki. Mom put it back in his mouth and told him not to spit it out. Shortly thereafter he grabbed it with his right hand and took it out of his mouth...then, right after that, he managed to put it back in his mouth!! We all found this quite amazing. I know it was a fluke and he didn't know what he was doing, but, it was exciting and cute to see.

Doctors, Doctors, and more Doctors

2009-01-14T15:23:00.002-06:00

Well, today I took RJ to the pediatrician. He's been having some breathing spells that we aren't sure what's causing them. They can last for just a few minutes to over an hour. After talking to the doctor she said that since his color remains a good healthy pink that there is nothing to be overly concerned with. However, we are being referred to a pediatric respiratory doctor. I'm waiting to hear when the appointment will be scheduled. One possibility may be a slight narrowing of the trachea. We were given a prescription for reflux for in case that has anything to do with it. We will see if it makes any difference.

Right now it seems like we as a family are going through a long period of health issues. I ask that you pray for us as we see the doctors we need to and try to find answers and solutions for medical problems we are facing. The Lord has been taking care of us and he will continue to. Please pray that we remember that all these things are in His hands to further mold us into Christ's image.

Visit to the ER

2009-01-13T21:38:00.002-06:00

Last night Aaron took me to the emergency room under the direction of my cardiologist. I had been feeling very tired and out of breath and the past 2 days things seemed to get worse. Well, first thing let me say the Lord blessed us even in this event. When we arrived I was the only one there. I was checked in and taken to a room. Our nurse was very nice and couldn't ask for a nicer one. The biggest problem we encountered was retelling the series of events and symptoms to a number of people. But, it's just something you have to do. A number of tests were ran including a CAT scan of my sinuses and another CT scan of my lungs. The CT scan showed no pulmonary embolis as well as the other things that the previous CT scan showed. The CAT scan of my sinuses showed that I do have a sinus infection. Thankfully this is an easy thing to tackle. After a first dose of antibiotics and a steroid shot we were discharged around 2:15 a.m. We arrived at 7:30 p.m. This is not uncommon for us.

Also, let me share with you 2 ways the Lord blessed us and wrapped his loving arms around us. While we were there, a friend from church brought Aaron something to eat as well as a drink for myself. He waited until about 11:30 pm in the waiting room to find out what the news was. We knew that we were going to be there much longer and thanked him for his kindness and encouraged him to go home and get some sleep. Secondly, after getting home Aaron and I managed to get to bed around 3:00. I woke up about 5:00 feeling completely disoriented and feeling like I was dying and there would be no time for me to get to the hospital. Needless to say, it was scary. With Aaron's help by talking to me and assuring I was ok, singing hymns, praying and reading the word the Lord was able to comfort me and calm my panic. Admittadly I was afraid and really couldn't fall back to sleep because I didn't want to wake up feeling the same way. I had attributed this episode to the steroid shot that I was given; however, after reading about the antibiotic I am taking it appears some of the side effects are anxiety and nervousness and in extreme cases confusion and hallucinations. I would say what I was feeling was extreme anxiousness and confusion. The Lord worked that night...he is the Mighty Comforter. It was only looking to Him that I was ok. Thank you Lord.

RJ goes to Church

2009-01-11T21:32:00.003-06:00

Today we brought RJ to church with us. He did great. We had a bottle before we left and he only made a couple little noises during service. This is good because the service is generally an hour and a half or more. Afterward, a diaper change kept him calm for some fellowship time. This was a big step for us because there is no nursery for him to go to. Children of all ages sit with the parents during service. It is a good thing because it gives children the great example of worshiping the Lord, listening to His word being preached, allowing them to see their parents worshiping the Lord. There is a room off to the side for parents and their children to go should the child become to loud or disruptive. It was a great service and everyone loved being able to see the baby. The comment we got the most was "look at all that hair". Yep, he's got plenty of hair. Now that we've taken him this time, it will make it much easier from now on. I only wish I took a picture of what he wore...it was so cute. I'll have to put it on him just for a photo op.

Thankful

2009-01-08T07:56:00.003-06:00

I had posted previously about 2 doctors appointments that I had. One of which was just the other day and came out with a good report. The other is a cardiologist visit at UAB. Originally the appointment date was March 5th. I'm not sure why. I called to reschedule and they were able to move it to February 17th. After the urging of Aaron because none of my symptoms have gotten better I called again to see if they could move me up. The difference between this call and the last, was that the person on the other end asked what symptoms I was having. She said that she would see if the doctor had my records (a folder the thickness of "War and Peace"), let her know what my symptoms were and call me back. That was a reliefe in itself. About 20 minutes after calling I received a call back and my appointment has been moved to January 20th. I am so thankful someone asked what was going on and I was able to be rescheduled. Thank you Lord.

Mom to the rescue

2009-01-07T14:33:00.002-06:00

I can finally see the bottom of the closet in R.J.'s room. There was so much stuff piled on the floor that I didn't know what was there, and didn't know where some things that I had seen went to. It was just chaotic. So, mom came over this morning to help me get a handle on it. Actually, she ended up doing all the work. I am so thankful that she was able to help. Now I can see the floor, I know where all the clothes and bibs and socks and burp cloths are, and have things organized by size. Some of you may know just how big a relief that is. I am not a very organized person at home. At work it's TOTALLY different, but, for some reason at home it's not the case. I am thinking about purchasing a book on how to get better organized. I think my biggest problem is being able to get rid of things and stop holding on to every little thing. And, after going through all the baby stuff, we managed to come out with a few hefty bags of things to sell on Ebay. Whew!

P.O.L.R.

2009-01-06T17:17:00.005-06:00

The Lord has blessed us with a lot of rain today. Rivers have risen and drainage ditches are filled. As I was driving home today, I happened to take notice of this. A thought came to me that I had learned in school; and that is: Water will always take the Path Of Least Resistance. I pondered that for a moment in regards to my Christian walk. Have I started taking the path of least resistance? I believe I have. With R.J. in our lives now, it's easy to use him as an excuse for not reading like I should, not taking time for in-depth Bible study, not studying as a couple. But, he can only be used as an excuse for so much...not that he should be used. However; what about not sharing with others the Gospel, like I could be? What about not giving tracts out wherever I go? What about not praying fervently for others as I should? What about not taking time to call or send an encouraging word to other brothers and sisters in Christ or the persecuted missionary who may not know where his/her next meal is coming from? I have started taking the path of least resistance. Please, don't take this to mean that I feel I should secure my salvation by doing these things...that is entirely not the case. But, out of love and obedience to the Lord, a desire to know Him, a desire for holiness and righteousness, a desire to love more like Him; both the saved and the lost. That is the reason to do these things. To not be afraid to meet resistance...

Doctors Appointment

2009-01-06T08:11:00.004-06:00

Yesterday I had a doctors appointment regarding the irregular CT scan of my liver. As it turns out that was not the whole story. Apparently there were also areas on one kidney and the spleen that were of question. As far as the liver is concerned, it is the opinion of the doctor that it is just a hemangioma; which is nothing. In regards to the kidney and spleen, what is seen is an infarction which is the death of an area of tissue due to blood loss. The logical explanation is that in each of my open heart surgeries blood flow is restricted from just below the heart and just above and a heart/lung machine is used. When this happened it created the infarctions. Since I'm not having any issues due to them everything is ok. So, it was a good report. Thank the Lord!

"God And Man At Table Are Sat Down"

2009-01-05T11:21:00.006-06:00

I heard this song last month at the Christmas musical at Grace Church of the Shoals If you go to the following link you can listen to a recording of the song. "God And Man At Table Are Sat Down" It's not the one from the Christmas musical, but this one is beautiful as well. If you can't listen from the link, the video from the Christmas musical is below; however, it was cut short and the end was left off.

Here are the lyrics:

O, welcome all ye noble saints of old,
As now before your very eyes unfold
The wonders all so long ago foretold,
God and man at table are sat down,
God and man at table are sat down

Elders, martyrs, all are falling down,
Prophets, patriarchs are gathering ‘round
What angels longed to see now man has found,
God and man at table are sat down,
God and man at table are sat down

Who is this who spreads the victory feast?
Who is this who makes our warring cease?
Jesus, risen savior, prince of peace,
God and man at table are sat down,
God and man at table are sat down

Beggars, lame, and harlots also here,
Repentant publicans are drawing near,
Wayward sons come home without a fear,
God and man at table are sat down,
God and man at table are sat down

Worship in the presence of the Lord,
With joyful songs and hearts in one accord.
Let our host at table be adored.
God and man at table are sat down.
God and man at table are sat down.

When at last this earth shall pass away,
When Jesus and his bride are one to stay,
The feast of love is just begun that day,
God and man at table are sat down,
God and man at table are sat down.

Out and About

2009-01-03T16:52:00.003-06:00

Today Aaron and I went out and about with R.J. It was a lot of fun. Aaron put the stroller together this morning and it was easy to navigate and had a smooth ride. We were able to get a bite to eat and then go to the Christian book store and pick out some . This is the first time we've taken him to a store. I was a bit apprehensive, but it was pretty easy; we just had to get our timing down and go between feedings. I am encouraged because I have been feeling like I was locked up in my house not able to go anywhere with the baby. This opens doors for us and I am excited. We will have to stock up on hand sanitizer, that's for sure. I wonder where we'll go next. I can't wait until he's able to go places and play. Oh the fun we will have.

Dr. Visit

2009-01-02T14:05:00.002-06:00

Today R.J. had a doctor's visit to get his vaccines and for us to talk about just some general concerns we had. He weighed 8 lbs .9 oz and measured 21 in long. He's growing well. Also, the doctor said that the amount of formula he's taking each feeding is good for his weight and not to be overly concerned about increasing his feedings. We are going to see how he does on this formula and if he's still having the tummy troubles we are going to switch him to a soy formula. Both the nurse and the doctor said that their kids were on soy formula and did well. His PKU test came back and everything was good. After discussing our concerns came the not-so-fun part of the visit. The doctor gave him a dose of Tylenol before he got his vaccines. They were able to combine a couple and reduce the number of sticks he had to have. We were very thankful for that. He got a total of 3 shots and did much better than I thought he would. Right now he's just haning out in his swing taking a nap. I'm sure the Tylenol helped the whole process. He's a trooper though.

Happy New You!!

2009-01-01T13:44:00.002-06:00

When I was a kid instead of saying Happy New Year I would say Happy New You. So, Happy New You to you! We are going to my parents for our traditional New Year's dinner consisting of: hog jaws, black eyed peas, turnip greens and corn bread. If you have never had hog jaws, don't let the name turn you away. It's just a really thick piece of bacon. It's pretty good. Also, each year we put a dime in the turnip greens and whoever gets the dime is supposed to have a prosperous year.

Do you have traditions for your New Years day??

Boycott

2008-12-31T10:30:00.003-06:00

For the past couple days RJ has been boycotting the swing. Don't know why because he loves the swing just like he loves his binky. Each time during the day I would put him in the swing after eating and he would just sit and fuss until I laid him down in his cradle. Last night it was a different story. After eating we put him in his swing and he started to fuss. Then we swadled him and put him in the cradle; as has been the normal routine for the past couple days. He laid in the cradle for a little while and started fussing...well, why don't we try to put him back in the swing. We did and he seemed to be over his boycott of the swing. He fell a sleep after a little bit and ended up going 7 hours between feedings that time. Hmmmm. We may be getting closer to sleeping through the night.

Also, a few weeks ago I called his DR to ask about the formula we were using. It seems to be giving him lots of gas. I know some gas is normal...but this is painful for him. I didn't hear back and made an appointment for him to go this Friday. I was talking to my mom yesterday and she tells me..."oh, by the way, we were checking the messages on the voicemail and the DR called and said to put him on soy formula." So, she did call back and gave us a reccomendation. I am still going to talk to her about it because Enfamil has a lactos-free formula and a soy formula and I want to put him on the best one. I also want to make sure he's getting all the nutrition he should be getting for a preemie. He seems to be gaining weight. I do, however, think if we got the gas situation under control that he would be eating more and gaining more. On average he takes 4 oz. There have been a few times he taken 5.5 - 6.5 oz in a feeding, so that tells me that he is capable of eating more.

Three times I have now chased the cat away from the fresh herbs I cut for the mini-quiches I'm making for tonight. Maybe the terragon is attracting him like catnip. Who knows. It's back to the kitchen I go.

Too Cute

2008-12-30T08:35:00.005-06:00

I just had to post these pictures of RJ.

Missed Opportunity

2008-12-29T10:37:00.001-06:00

The Lord put something in front of me that was so obvious this morning...and what did I do? I made excuses. Last night Aaron and I were watching "The Way of the Master" show that we got for Christmas. One episode was on Jehova's Witnesses. It was a very good episode that gave lots of insight as to how to witness to them. Then this morning, I was watching Wretched TV and the subject of witnessing to a Jehova's Witness was brought up. Then, a little while later who rings my door? A Jehova's Witness. What did I do? Nothing. That's right...nothing. I made the excuse that I was home alone with the baby, hadn't had a shower and therefore could not answer the door and potentially witness to them. The Lord puts opportunities in front of you...take them. Ugh!

Can't Sleep

2008-12-23T00:18:00.005-06:00

It's about 12:20 AM and I am sitting here blogging. Why? Well, Aaron is at work right now and I don't really sleep when he's out and I'm waiting for his safe arrival home. If he were out of town it would be a different story. I'd just wait to get the phone call that he'd made it safely to his destination and then be able to sleep.

R.J. finished a bottle about 30 minutes ago and is looking very peaceful in his swing with his Auburn blanket keeping him warm. Go Tigers!! I am looking forward to Christmas day because there will be about 30 of us at my parent's house and it will be fun hanging out with all the relatives. R.J. will be making his debut to all the family members that day. Some have already seen him, but not all and I had been very protective of him being around other people. Mind you, the school-aged children will have limited contact and lots of antibacterial hand gel. Yes, I am one of those moms.

So, anyone else out there wondering..."Where did this year go?" What's amazing is how fast the days are going by now that R.J. is here. I think I'm coming to terms with what other moms have told me about enjoying him now because it goes by so fast. He's 2 months old now...I know it's not that old, but it went by very fast. I'm sure I'll be putting another post on here about him being 6 months old and a year old and how fast the time went. But, as a whole...I don't know where this year has gone. It has been a great year of growing in the Lord; a year of miracles, a year of trials; a year of building new relationships...it has been a great year because it is all what the Lord has brought in our lives. I can't wait to see what the Lord has in store for us next year.

Just Doesn't Feel Like...

2008-12-22T22:22:00.005-06:00

It just doesn't feel like Christmas is 3 days away. With the events surrounding the arrival and homecoming of R.J., as well as adjusting to being new parents; I have not come to grips with the reality that Christmas is right around the corner. We've not completely finished our shopping, but we are almost done. Our tree is a far cry from what it normally looks like on December 22nd of previous years. We haven't attended Christmas parties as we had in the past years because we don't drink anymore and it is better for us to avoid potential stumbling blocks. I have built up high expectations of R.J.'s first Christmas without thinking about the fact that he is not old enough to enjoy it and interact as he would when he gets older.

But, I will say this...more important than if I feel like it's Christmas, giving and receiving gifts, having a decorated tree, or seeing R.J. "enjoy" Christmas, is the fact that for the first time in my life I actually really understand what Christmas is all about. It was God's perfect plan that He would be glorified by the birth, crucifixion , and resurrection of His only begotten Son. It was God's plan that through Jesus Christ he could be both Just and Justifier of sinful men. On December 25th I would tend to focus on just the birth of Christ and superficially acknowledge the crucifixion, burial and resurrection that followed. However; things have changed in my life and I fully see the picture as it should be viewed. Without the birth of Christ there would have been no crucifixion where he bore the wrath of God the Father, that we all, as sinful man, should have incurred. There would have been no resurrection and the conquering of death . There would have been no ascension in to heaven and the promise of his coming back. All these things are included in the Christmas story because at the heart of Christmas is CHRIST. We cannot acknowledge Christ at Christmas without acknowledging the purpose of His birth. And when speaking about Christmas it would appear that the Gospel would have to be shared in order to tell someone about the meaning of Christmas.

So, no, it doesn't feel like Christmas is 3 days away; at least not the same feeling I had in the past. But what has replaced these feelings is the knowledge of truth...the truth of His birth and all that it encompasses...the Gospel.

Merry CHRISTmas

2008-12-19T08:22:00.002-06:00

Without his birth there would have been no crucifixion and atonement for OUR sins. Praise God!!

Another Use for Duct Tape

2008-12-18T02:41:00.002-06:00

If you happen to view the slideshow long enough, you will see my mother working her magic with some duct tape. "What is she doing?" you might ask. Well, my wedding shoes were too big and were slipping on my heel so she put a small amount of duct tape with the sticky side exposed so that my heel would stick to it and the shoe would not slip. So, for the entire wedding and most of the reception...I was stuck to duct tape. I bet MacGyver never thought of that one.

Emerging/Emergant Church Movement

2008-12-14T14:00:00.004-06:00

I encourage you to take a look at this post. We must be discerning about the things we hear and chose to accept as truth. Emergent Church Movement

Jesus & Santa

2008-12-12T20:40:00.001-06:00

Didn't expect that...

2008-12-10T13:10:00.002-06:00

RJ is almost 7 weeks old. I can't believe that next Friday he will be 2 months old. Time is really flying by. The sleepless nights are getting better...he is sleeping a little bit longer between feedings here and there. Last time we weighed him he weighed 7 lbs. We aren't sure what side of 7 lbs he's on, but if he keeps up the good work he'll be at 8 before we know it. He is now wearing NB clothing. It's a little big but it still looks cute. He can still wear some of the preemie clothes but he's grown out of most of it now. I've got lots of pictures to post as soon as I find the cable for my camera. He's getting cuter and cuter every day. I think he's starting to get his day's and nights in order. He's awake more during the day and by the late night he is ready to sleep continuously between feedings. We are getting used to getting up during the night to feed him. It's not that many times...about 2 now and then one around 5-7 am. So, it's not bad at all.

As I had mentioned before, I had a CT scan and it showed that there were no clots in my lungs. After staying on diuretics for over 3 weeks I am still short of breath and can't stand for long, walk much or go up stairs easily. Things that were in no way a part of my life before. I had my appointment with the cardiologist where he told me that the scan did pick up a couple things. First it showed something on my liver. I can't remember what the doctor said it was, nor could I pronounce or type it if I did. I have an appointment on January 5th with a stomach doctor. Second, it also showed what is called a Pulmonary Artery Stenosis; which is a narrowing of the pulmonary artery. This would explain the symptoms I have been having. This is odd because PAS is a congenital heart defect and would've been detected during one of the MANY cardiologist visits as well as the 3 heart surgeries I've had in my 30 years of life. My cardiologist is not sure what to make of it so he is referring me to UAB; which happens to be where my last heart surgery was. My appointment is March 3rd; however, I am going to call to see if it could be sooner...maybe there will be a cancellation and they can get me in. Please continue to pray. I know that this is in the Lord's hands and he is taking care of everything.

Thoughts

2008-12-06T17:15:00.003-06:00

Last night Aaron and I were able to go to a Bible study with some friends and it was just what I needed. Our discussion was originally about the subject of power over sin. It is a very good topic that is not talked about enough. It's as if we don't want to admit to the sin that is in our lives and the fact that we struggle with sin even as Christians. I struggle...very much. It is the Holy Spirit, in those who are truly converted, that convicts us of sin. But, what are we to do with that? What are we to do with the temptation to sin? What are we to do with the sin we know we are to put to ? There is a phrase that is used, and I have used it myself..."Let Go and Let God". That is one view on how to deal with temptation and sin in our lives. That we are to give it up to God and he will just take it away...he will deal with it for us. At one time I shared that same view; however, today I do not. After looking at scripture we are shown something different. In 1 Timothy 6:11 tells us "But flee from these things (see vs. 3-10), you man of God, and pursue righteousness, godliness, faith, love, perseverance and gentleness." In this verse were are told things that we should actively do; we are to "flee from the things" and "pursue" the remaining of the verse. We are to make an effort. We are given the power of the Holy Spirit to help us do these things. Again...active; not passive. John Piper puts it a different way...we are to make war on the sin in our life.

Update

2008-11-29T14:21:00.002-06:00

It's been a while since I've updated on here, so I thought I would. R.J. is continuing to do well. He's eating lots and seems to be gaining weight. We decided to weigh him by standing on the scale with him in our arms and then without him. He's up to 6lbs. I went for my CT scan and everything was ok, there were no clots. Now I am just waiting to hear back from the cardiologist on what we are going to do next. Let me share with you a series of events...just before R.J. came home I came down with a cold. A few days later Aaron starts to come down with a cold and we go to stay with my parents. His goes away fairly quickly and next thing we know...mom comes down with a cold. So far R.J. has not come down with anything. Then, my parents go away for the weekend and mom gets a really bad kidney and upper resperitory infection. Yesterday she went to the ER and was given some IV antibiotics that seem to be helping. Now she seems to be on the upswing and recovering. We are a lovely bunch here...but it appears we are all getting better. I am excited that I will get to go to church tomorrow. Aaron and I are going to take turns going until R.J. is big enough to be around more people.

Thanksgiving was good. We had a total of 17 people here...actually, 18 counting R.J. but he didn't get any turkey. I was glad that we were able to stay here and not have to go home. We sequestered R.J. in my parents room and had limited access to him. It worked out well, and I don't think anyone had their feelings hurt that they could not hold him. It was a good holiday and we are looking forward to Christmas.

Away from Home

2008-11-19T16:40:00.002-06:00

Right now we are staying with my parents so that we can get a little more rest and some much needed help. Aaron has gone back to work and it is a little overwhelming taking care of the baby by my self so, my parents offered to let us stay with them and we took them up on it. It is taking longer than we had expected for me to recuperate from everything. Right now it appears that I have still got fluid on my lungs and the dieuretics I've been taking do not seem to be working. They are a low dose, so that may have a little to do with it. We are waiting to hear when I will be scheduled for a CAT scan of my lungs to make sure there are no clots. With my heart condition, we really don't want to take any chances. On a much more positive note...we took R.J. to the doctor today and he weighed 5 lbs 2 oz. We are very thankful that he is continuing to gain weight and remain healthy. He had to get another PKU test today, wich required him to get a stick on the heel of his foot. He did not like that one bit. After it was all over and we were home, he did manage to take a good sized bottle and go to sleep. So, I think the PKU test didn't phase him that much. Also, he as grown out of one of his outfits and it looks like another one isn't going to fit him any more. Way to go R.J.!! Keep growing!! The Lord continues to show us His graces day by day.

Fat Boy

2008-11-15T16:24:00.002-06:00

Yesterday we had our first visit with the pediatrician. It went very well...especially since we didn't have to get shots on that visit. The next visit will be a different story. When we brought R.J. home from the hospital he weighed 4lbs and 2oz. At the doctors office he weighed 4lbs 11.5oz. We were shocked. We had been concerned about his feedings and that he was getting enough to eat...needless to say, he is getting plenty. He also has a clogged tear duct and the DR gave us a prescription for some eye ointment. It is already working. His little puffy eye is looking much better. Unfortunately, he is still very gassy from the formula he is eating; but on the bright side, we have been able to burp him a little better here lately...so, that may help the gas issue a lot.

Home At Last

2008-11-12T09:26:00.003-06:00

R.J. is home...we are tired. We finally sprung him from the hospital around 3:00 yesterday afternoon. The nurses didn't want to see him go...I would've liked to take one with us...but insurance wouldn't pay for it. Last night I got about 3 hours sleep...more than I expected. We've had a few little scares...mainly scaring me and not Aaron and nothing more than what normal babies do. However; we've never had a baby, so, it's all new to us. He is doing good and we are getting acclimated to his schedule. We have our first visit with the pediatrician on Friday. That should be fun. All this is trial by fire.

Brace Yourself

2008-11-10T07:52:00.003-06:00

Aaron and I went to the hospital last night to visit R.J. We were happy to see that he was in his own crib now. I thought to myself..."just a few more days and he will be home". I'm sure Aaron was thinking the same thing. Then the nurse dropped the ..."he may be coming home tomorrow." WHAT?!? This whole time we had been told that it would be at least another week before he got to come home. Maybe that's so we wouldn't get our hopes up. Needless to say, we were in a state of shock. Don't get me wrong...we are excited that our son will be coming home soon. We are still a little unprepared, so, today will be used to make sure we've got as much in order as we possibly can. We have always known that the Lord would bring him home from the hospital in his perfect time...we just have to remember that His time is not always ours. If you would please pray because right now I am fighting a cold and certainly don't want to get R.J. or Aaron sick, we would appreciate it. On a side note, Aaron has taken such good care of me these few weeks, I would for him to have to take care of both R.J. and his sick mom.

Stinky Monkey

2008-11-08T23:14:00.003-06:00

This is before the monkey had to be removed. It now resides on top of the isolette. I don't think RJ really misses him. Maybe the smell. :)

Getting Bigger

2008-11-08T16:47:00.003-06:00

As of our last visit to the hospital this afternoon R.J. now weighs 3lbs 14.9 oz. He may come out of the isolette this weekend and be moved into a crib. This also means he's closer to coming home...possibly next weekend. We are excited, but, we are taking it day by day. Again, thank you for all your prayers. The Lord truly has his hand in this and we are fully trusting Him that He will bring R.J. home when he is supposed to be here. Also, on a funny side note...the monkey had to be taken out of the isolette because R.J. is a little gassy and they were afraid that the monkey would retain the smell. Go ahead...laugh...we all did! We love our smelly son.

Finally

2008-11-01T18:47:00.007-05:00

I finally have some more pictures to put on here. R.J. is up to 3 lbs 7.8 oz. He is slowly gaining weight and will be home in no time. This afternoon we went and picked up some stuff from Babies R Us because it doesn't feel quite right not having more things for him here. We are still waiting for the furniture to arrive and that has been an ordeal of it's own. It should be here in about 2 weeks...we are cutting it a little close, but we are going to use a cradle beside the bed for a while. The only thing I would really want here is the changing table. But, I'm sure it will all work out. Here are some pictures of R.J.

Quick Update

2008-10-30T07:17:00.002-05:00

I haven't had much chance to post anything lately and I am hoping to get some pictures on here by this weekend. R.J. has moved to the isolette and is now wearing clothes. He has increased his feeding to about 30 cc and today I will find out if it's even more than that. He has lost just a little more weight but not enough to really count. He doesn't have an IV so we are thankful for that. If he continues to thrive, and start putting on some weight we may have him home in just a couple weeks. I was able to feed him yesterday and hold and rock him for a little while. I am hoping I will be able to do that again today. The Lord has really had his hand on this child and he is the only one to receive the praise. Thank you for your continued prayers.

Mommy S.

Update

2008-10-28T22:03:00.003-05:00

I wanted to give a quick update... Aaron and I were able to spend some time at the hospital this afternoon to bring RJ some food from the outside. :) Here is the latest information...he has lost a couple more ounces and is at 3 lbs 6 oz. Very normal. We were also informed that his IV was taken out and there were no plans on putting it back in unless necessary. He has also increased his food intake from 10 cc to 25 cc. If he continues to do this well with the next few feedings he will be moved to an isolette (sp). He will then be able to wear clothes when he is moved. I've got more pictures to post, but have not had the time. I am currently staying with my mom during the day while Aaron goes to work and she does not have internet access at this time. The Lord continues to show us that RJ is in His hands and we are so very thankful that he is taking care of him and has put care providers who are doing a good job taking care of him. We cannot wait to get him home, but only when the Lord decides it is time for him to come home. He has a perfect plan.

Again, THANK YOU so much for your prayers. Please continue to pray for his continued good progress and also, for his future salvation.

Mommy S.